Wednesday, September 26, 2012

Trucking Right Along!

Today's visit was really good!

Last nights weight: 2lbs 2oz

Respiratory
Austin is still not requiring additional oxygen and was even taken off the jet ventilator and is now on the conventional. We had to leave for about an hour while they did a procedure on another baby and when we returned the conventional had been turned down. He is really close to coming off and going onto Sipap. The Sipap is like a cpap but it will remind him to take a breath should he forget.

Surgery/Stoma
He is still recovering well from his surgery. They reduced his pain meds/sedation further and he seems to be tolerating it. The surgery site looks good. They are waiting for it to start producing a little stool and then they will start trying to feed him. Once it starts producing they will place a bag over his ostomy until they close it, which should be about 6 weeks.

PDA
The valve in Austin's heart that would normally close shortly after birth seems to still be open. He is not symptomatic now but could be in the future. It's a wait and watch for now.

Other tests
Austin had an ultrasound done of his head to check for bleeding in his brain which is common in preemies. At this point they could not detect any bleeding in Austin's brain. Yippee!

Tuesday, September 25, 2012

Getting up to Date!

Yesterday I was discharged from Baylor Grapevine and went straight to Baylor Dallas.

The relief of being able to see Austin with my own eyes was amazing! He is SO tiny but SO perfect!

His nurse says he is doing really good. Last night they started weening him from the ventilator he is on but it could take several days to accomplish. Once they feel he is ready he will be put on a ventilator that will allow him to do a little more of the work but still support him.

Last nights weight: 2lbs 1.5oz

I am also doing well although still recovering from my surgery. My blood pressure is still elevated but the hope is that it will return to normal in the next few weeks and I can start coming off all the meds I am on. I also think once the swelling (my feet are SO swollen that my flip flops leave deep grooves in the top of my feet) that showed up after delivery goes down that will help as well.

After we visit Austin this afternoon, we are heading to get Jackson and bring him home. I'm sure he will be so excited for things to get back to normal.

Thanks for all your thoughts and prayers!

Becky

Saturday, September 22, 2012

Surgery - One Day Old

Today Austin was flown by CareFlight to Baylor hospital in downtown Dallas. The doctor/nurse discovered this morning, after doing a routine X-ray, that there was an issue with his intestines which was filling his abdominal cavity with air.

By 1:00pm he was on his way. Once he was admitted and stabilized they began the operation. The surgeon found a small perforation on Austin's small intestine and repaired it by doing a stoma. For the next six weeks, that section of his intestine will open to the outside and then he will have another surgery to close it.

We have been blessed over and over throughout this. From the doctors knowing that it was the time to deliver to the NICU staff that noticed something not quite right on his X-ray and getting him transported quickly. Also to the team of doctors I've never met that performed the surgery and corrected the problem. Thankfully Jacob and Judy, Jacobs mom, were at the hospital for the procedure and were able to meet with the doctors after they were done.

Please pray that Austin heals quickly so that he can be fed and continue to grow. Please pray that there are no additional complications to his tiny, fragile little body. Please pray for the continued wisdom of the medical staff that is caring for him.

Thank you for your continued prayers and support! We are seeing results!

Urgent Update!

The neonatologist just came in and talked to me. Austin has a perforation somewhere in his intestines and will be transferred to a bigger hospital for surgery today. Please pray that it is a success and that he can be transferred back here once he is stable.

Birthday!

Austin Jacob Craig was born at 3:55pm September 21, 2012. He weighed 2lbs and was 13 3/4 inches long at birth.

Friday, September 21, 2012

Today is the Day!

Too many things are changing, so around 3pm today I will be delivered.

Jacob will update once he is born.

Thursday, September 20, 2012

28 weeks!

I have now been here for 16 days! Today I am now 28 weeks 1 day and farther along than when I delivered Jackson.

Me
This past week has been pretty much the same schedule. I had blood work done again on Thursday morning and it all came back normal. Since my blood pressure is still the biggest issue, my doctor added another medication in addition to what I am already taking. It is amazing that I am able to function on the amount of medication I am on! The nurses even question my dosage since I guess I'm one of few that has ever required this amount and still have blood pressure that is running high.

Starting on Monday,  I am now having lab work done everyday since I now have Preeclampsia. I found out today that my platelet count has been dropping but is still in the normal range, which is an indicator of HELLP Syndrome. The last urine test showed that the protein level is increasing. I am now doing a 24 hour test so they can get the exact amount.

On Friday I was having a really rough day just dealing with being here and having to depend on others to handle things. After getting worked up about a particular situation and being due for another blood pressure check, I had a really nice surprise. Dusty, the therapy dog, stopped by my room. He was the sweetest Golden Retriever! Just what I needed as a distraction and to help me get ready for my blood pressure check. The reading was still high, but I'm sure nowhere near what it would have been had he not stopped by.

Baby
On Friday morning I had another ultrasound and the baby is weathering this like a champ! He is VERY active and doesn't like to cooperate when the nurses try to monitor him. I spent a total of two hours on the monitor to get 20 minutes of monitoring. He tries his best to kick the leads off everytime.

Please pray that my platelet count does not go any lower and that the protein does not go any higher. I really want to make it to 32 weeks, but if this keeps progressing I will be lucky to get to 30 weeks.

Thank you for your continued prayers and support!

Becky

Saturday, September 15, 2012

Update

This afternoon I completed another 24 hour urine test. About an hour ago the nurse came in to relay the results and the protein count had tripled from last week. With my blood pressure still going crazy and now the protein starting to become more of a factor the time on the clock is getting shorter. I still hope to make it to 32 weeks, but only time will tell.

The baby is handling everything really well at the moment which is a blessing!

Wednesday, September 12, 2012

27 weeks!

I have made it through the first week in the hospital and am settling into a routine, if you can call it that. Some moments are tougher than others, but I'm getting through.

My blood pressure is still a great concern since it continues to creep higher even though I'm on an extremely high dose of medication. Over the past few days the diastolic has been getting and staying in the low 100's. My doctor mentioned this morning that if the trend continues that we would add a second medication. One good thing is that the hospital allowed me to bring in my own meds since they only stocked the 250mg tablets and I have to take 1500mg twice a day. I was having to take 12 blood pressure pills a day and for those that really know me know what a feat it is for me to take one pill much less 12.

In addition to monitoring blood pressure, I also visit the perinatologist twice a week for an ultrasound to check the baby for growth, fluid level and overall health. I'm hoping on my Thursday visit I can get a estimate weight update on him. 

The last thing they are watching on me is lab work. I was originally scheduled for a once a week blood draw, but with my blood pressure increasing my doctor has ordered it for twice a week. The only bad thing about this is they show up at or before 6am to collect. Not my idea of a nice way to wake up! So please be thinking of me on Monday and Thursday mornings as the vampires come to collect.

Please keep Jackson in your thoughts as he is coping with all of this. He understands that Mommy is in the hospital for the baby, but being apart is hard for everyone. He's had a few meltdowns and gets really sad when it's time to leave. He's tried to hide under the covers of my bed and asked Jacob to let him stay with me. Please also think of Jacob as he is juggling the details of work, hospital and family. Thankfully we have a solid extended family support system!

Thank you all for your prayers and support!


Friday, September 7, 2012

Doctor Updates

I'm now pretty settled in and have seen most of the specialists that will be following me through this. Here's what we know and sorry if it is TMI:

Dr N (my ob/gyn) - In the tests that were order at my arrival all have come back completely within normal ranges except one. Because of the risk of Preeclampsia again, a 24 hour urine collection was done to see how much protein I was "spilling" to at least have a baseline to start. The top of the range according to textbooks is 150mg and my result was 300mg. Although a little higher, no one is overly concerned at this point. Just to compare to where I was with Jackson, my reading at admission was 3000mg. He also ordered steroid injections that will help the baby's lungs mature at a faster rate to prepare him for a preterm birth. I get two initially a day apart and then will get a booster close to when we think he might be delivered.

Dr. G (perinatologist - high risk ob/gyn) - He did an ultrasound when I was admitted on Wednesday and the baby looked great. His estimated weight was 2lbs 2oz (Jackson was 2lbs 9oz at birth and was 2 1/2 weeks farther along). I had a second ultrasound done this morning and baby is still looking good. The doctor mentioned that as long as my blood pressure stayed below under 160/110 we would keep everything as it currently is medication wise. Last reading about 2 hours ago was 142/85. It has fluctuated from a high of 157/101 last night to the current reading, so I'm still not having a stable blood pressure. He does not want to adjust or add any additional medication at this time because if it goes too low it could affect blood flow to the baby and the same if it is too high. The baby seems to be used to everything and is obviously thriving.

Dr K (neonatologist) - First I want to say that we have a long history with this doctor. She was the one that took care of Jackson for his 81 day stay here 5 years ago and I am SO thankful she is still here. She came by and visited with me. I had a list of questions ready to see what support would be needed based on when my ob/gyn thinks the earliest I might deliver (32-33 weeks) and what complications we might be facing with him being born at this gestation. This timeframe would be lightyears better than what we experienced with Jackson and would probably mean only a 4-6 week NICU stay. We are hoping to make it as far as possible and bring this baby home, but spending a little time with NICU staff would not be the end of the world.

Well, that's where we stand today. Jackson is spending the night with Grandma tonight and most of the day tomorrow. Please be thinking of her and pray she gets some sleep. Nana is still recovering from having him stay Wednesday night and all day Thursday. We are hoping to get him set in a regular schedule, so he knows what to expect and keep behavior issues to a minimum.

Thanks again for all the prayers and well wishes we have received!

P.S. I was finally moved to out of Labor & Delivery and am in an antepartum room, which is where I will stay until the time arrives.

Thursday, September 6, 2012

Here We Go Again...

As many can remember, almost 5 years ago Jackson was born premature at 28 weeks due my development of Preeclampsia/HELLP Syndrome. It has taken Jacob and I almost these past 5 years to get to the point of going down the path of having a second child. Earlier this year, we found out that baby #2 was on the way! This news left us being excited and terrified at the same time, if that is even possible.

In early May, we met with my doctor to see how everything was progressing and to get more information on the risks of a repeated complication. At that appointment, everything looked great!

At the June appointment, the first indication appeared of how high a possibility I had of developing preeclampsia again. My blood pressure was elevated and I was put on medication to try and keep it down. Unfortunately, the first medication made me sick and it was changed shortly thereafter. The second medication seemed to work, but it made me SO sleepy.

Being the good patient I am, I started monitoring my blood pressure regularly and faxing to the doctor and received several increases between my June and July appointments.

On August 17th, I was sent home on bed rest for the weekend. The next week I was put on full bed rest for the duration.

Since at this point my doctor had me coming in every two weeks to keep a closer eye on me, my next appointment was scheduled for September 5th. In the days approaching this appointment something in my gut was telling me that things were about to change and boy did they! Within about 5 mins of the doctor entering the room, he was filling out admission paperwork. Fortunately I was listening to that little voice and packed my bags for the hospital since last time I was not at all prepared.

I am now 24 hours into what I hope is at least a two month stay. So far I have been thoroughly checked and my only symptom so far is still the high blood pressure. The best readings come when I lay on either side, so when the nurse comes in I quickly get comfortable to try to get it as low as possible. All of the testing done so far has come back with absolutely no sign of Preeclampsia.

Please pray for my sanity through this process and that the effect on Jacob and Jackson is minimal. Jackson loves his mommy and because of Jacob's work schedule this week has been/will be shuffled between his grandparents through Saturday. Jackson loves spending time with Grandma, Poppaw, Nana and Big Pa, but under the circumstances he's been really clingy with Jacob. For me, being confined to one room is mentally exhausting and a true test of ones mental stamina. Being away from Jacob and Jackson is the absolute hardest! It's almost like I've hit pause while their lives are continuing with the nightly visit to Mommy. 

The ultimate goal for me is to walk out of this hospital with a healthy, (almost) full term baby in my arms. When I leave I want him to go with me and if this is the path we take to get there, so be it!

Thank you all for your prayers and well wishes!

P.S. I need to thank those that are stepping in and picking up the slack.

Mamaw - You have been spending your time coming over and making sure that bathrooms are cleaned, dishes are in the cabinet, laundry folded and put up, and doing anything that you think might need to be done to keep us running since I started having problems.

Mom - You have been great at help with Jackson. Working around Jacob's schedule these past few weeks and doing the exchanges at super early hours in my opinion and then getting him back to Jacob later in the evening or keeping him overnight. You have also found time to make the 40 mile drive more times than I can imagine to take care of me while I was at home and unable to do anything. I would also like to mention that you have done this after only having had a full knee replacement barely over two months ago.

Judy - I really don't know where to begin honestly. You have been willing to do anything that we have asked although I have been reluctant to ask anything because you already do SO much You have fed us regularly to make sure that with Jacob's schedule that we all are eating. You have come to our house when Jacob was working late to make sure that Jackson got a bath and put him to bed making sure he was getting an adequate amount of sleep. You did all this while your house was torn apart from a water leak and going through major repairs. I seriously don't know how you do all that you do.

Jacob - I know this situation probably brings back a lot of memories you would like to permanently forget. Thankfully you aren't the one with the blood pressure issue! With the crazy hours you have to work to keep us afloat and now with me unable to help with anything at home, I know the pressure you must be facing. You know I would probably not be strong enough to handle all of this. I know it is your Faith as I've watched it grow over the past several years that is now carrying you through. I know very soon our house will again be filled with another set of little feet and as the spiritual leader of our family I know you will make sure that this little one will learn love of our Lord just as you have made sure that Jackson has. I love you dearly and hope that this little speed bump in our lives will bring us even closer together than the last.